Losing a baby is one of the most devastating and heartbreaking experiences that any parent has to face. It can feel incredibly lonely, even with the love and support of family members and friends there to help. You are never alone. There are lots of organisations out there and other bereaved parents wanting to talk. If there is no support for you locally, you can normally find someone to talk with online or over the phone. Below are some of the helpful and supportive organisations we know of. If you know of others that would be helpful to add, please don’t hesitate to get in touch ♥
Information & support websites A – Z
A lovely and comforting website filled with helpful practicalities, support groups, articles, poems, songs, memorial ideas etc following the loss of a precious child. This website will be helpful to anyone effected by the loss of a precious baby and was set up in memory of Lewis.
Aching Arms is a baby loss charity run by a group of bereaved mothers who have experienced the pain and emptiness of leaving hospital without their much wanted baby. Their aim is to raise awareness of the impact of pregnancy and baby loss and bring some comfort to bereaved parents and their families after the loss of a baby. They provide Aching Arms Bears to hospitals for midwives to give to newly bereaved mothers. They also reach out to mothers who contact them via their website, email, Twitter and Facebook and send dedicated bears, from one mother to another.
ARC offers support and information to parents throughout the antenatal testing process. Its role is to help parents arrive at the most appropriate decision for them in the context of their family, when faced with the difficult situation of a serious abnormality with their unborn baby. Helpline: 0207 6310285
The Baby loss website provides information and support online for anyone affected by the death of a baby during pregnancy, at birth, or shortly afterwards. They hold an annual Awareness Campaign each October, joining forces with four national charities to plan remembrance events, distribute ribbon pins, and to raise awareness of pregnancy loss and infant loss amongst the general public and within the health sector.
Bliss is the leading charity in the UK working for premature babies. They campaign for improvements in neonatal care, support parents and families, and promote new developments and innovations in care. Helpline: 0500 618140.
Offering counselling and support to parents in relation to pregnancy loss and to those having to make the devastating decision to end a pregnancy for medical reasons. Please note, just a warning that this service is also for those choosing to have an abortion for other reasons, which (not in a judgemental way at all) we know may be upsetting to see on the website for some people visiting our site. This organisation has been recommeded to us from someone who had to make the utterly heartwrenching decision to end her pregnancy due to medical reasons and Care Confidential helped her a great deal.
Baby bereavement clothing following the loss of a precious baby.
Chloe’s “Count the Kicks” Campaign want to raise awareness of the risks surrounding later stages of pregnancy, we also want to empower expectant Mums to take responsibility of their own health and care and that of their unborn babies. We want to ensure expectant Mums work with their midwives and healthcare providers by being aware of their baby’s movements and development, and have the confidence to call for advice if they are worried at all.
Christina takes us through the heartbreaking loss of her beautiful daughter, Mia. Christina offers support and shares the things that have helped her cope with the devastating loss of her daughter.
ComforTED’s primary mission is to provide recently bereaved parents of tiny babies with a pair of teddies. One to hold your child’s hand long after you are unable to. The other to be cherished as a keepsake ♥
A really helpful directory for you to find a counsellor in your area when / if you feel ready. There is also lots of helpful information and interesting articles to have a browse through too.
The Ectopic Pregnancy Trust offers support and advice to those who have suffered from ectopic pregnancy. They offer support via a helpline and their website, and are also aiming to raise awareness of ectopic pregnancy. Helpline: 01895 238025
Emily’s Star aims to help out families and nurses across the UK who care for children with life limiting and life threatening illnesses. They raise awareness of Trisomy 18 also known as Edwards Syndrome, the UK’s second most common syndrome and they also provide neonatal boxes to local neonatal units (milton Keynes) which include items for both mum and premature or underweight babies.
A Worcester, Worcestershire based support group for those who have suffered and early pregnancy loss, stillbirth or neonatal death offering monthly meetings, 1-2-1 support via Skype, the phone, Facebook and other online mediums. Their website provides information and 24/7 support not just to parents but also to grandparents, siblings and other family members and friends.
This beautiful website is packed full of information and support. The founder, Mel Finley’s Mummy is also working really hard towards a training package for health professionals working with bereaved parents. Whilst in some areas the care is wonderful, this is not the case in all and Mel’s aim is to work towards equality in services offered all around the country. Our care and the help with making memories following the loss of a precious baby is so important to how we grieve in the years to come. An incredibly helpful, informative and comforting website to visit following the loss of a baby.
Through the devastation of losing their precious son Francesco “Frankie” Enrico Ventura on 29th November 2013 and bringing home a memory box from Towards Tomorrow Together instead of their son, of arranging his funeral, of him being brought home in a tiny casket box after his funeral, his parents Lisa and Russell Ventura knew they could not let Frankie’s memory die. He existed, and they wanted his existence to mean something and to help others. And so “Frankie’s Legacy” was born.
Frankie’s Legacy will very soon be a registered charity, and they aim to raise funds to equip the delivery suite facilities there and at other hospitals with comfortable chairs, fold out bed and other home comforts so that parents to be can have a more relaxed and positive experience when giving birth. Additionally they aim to provide vouchers towards the cost of hospital car parking, wi-fi and food for the Dad to be/birthing partner, as well as provide memory boxes for those who have had a stillbirth, and smaller keepsake boxes for those who have had an early pregnancy loss.
Friends of Serenity is a non-profit organisation that was set up by Joanne Edwards at the end of May 2013 after she lost her son Luke, earlier that year, as a result of Trisomy 13. The chairity aims to preserve and protect the health of sick pregnant women and those who have suffered a miscarriage, stillbirth, or neonatal death by providing and assisting in the provision of facilities and equipment at East Lancashire Women and New Born Centre, to support newly bereaved parents by the provision on memory boxes and to provide qualified information by any means appropriate on the chromosome disorder Trisomy 13.
The Jessica Sherman foundation has been set up to comfort and support anyone affected by the death of a baby from miscarriage to 1 year.
The Lily Mae foundation was set up in July 2010 in memory of a very special little girl. It was formed to create a lasting legacy to not only Lily Mae’s parents and family, but also to many others who were not fortunate to meet her. Their aim is to offer support to parents and families following a stillbirth or neonatal death and to raise awareness of baby loss.
Group B Strep is the most common cause of life-threatening infections in newborn babies in the UK. GBSS offers information to pregnant women and families affected by GBS, informs health professionals on GBS infection prevention, and supports research into preventing GBS infections. Tel: 0870 8030023
Based in Warrington, their aim is to make it more of a home from home in the hospital bereavement room for bereaved parents and their families, allowing them to spend time with their precious babies without feeling under pressure to leave to soon.
Helping sick babies, supporting bereaved families, increasing awareness of Vasa Praevia, breaking the taboo of babyloss and empowering pregnant women.
This link will take you directly to an interesting article relating to Post Traumatic Stress disorder (PTSD). The website explains about how hypnotherapy works and also enables you to search a database to find a qualified practitioner near you.
An online support community for parents who have lost a baby. Set up by bereaved mothers who found support and friendship through sharing their grief over the loss of a baby.
Offering online & phone support to grieving families who have experienced the loss of babies/children due to Miscarriage, 2nd trimester loss, Premature birth, Stillbirth, Neo-natal loss, SIDS, accident or illness.
Little Things is a non profit organisation making specialist bespoke clothing for angel babies. Many angels are born so small that standard clothing does not fit. We believe that every child has the same rights. Angel babies deserve to be dressed appropriately for their funeral. Some are so tiny that clothing is not suitable so an angel pouch is a cosy alternative.
Macys Memory is a registered charity based in Northamptonshire that help families of terminally ill children with a variety of funds from last wish UK holidays to sensory items. They also fund funerals and memorials. The charity fund families within a 200 mile radius of NN18 location and whos child fits the criterea.
The Miscarriage Association offers support and advice to those who have lost a baby during pregnancy. They have a helpline, a full range of leaflets and factsheets, and support groups and telephone contacts across the UK. They also work with health professionals to help raise awareness and sensitivity. Helpline: 01924 200799
OC Support – Help and support for women and families affected by obstetric cholestasis (also known as intrahepatic cholestasis of pregnancy)
Action on Pre-eclampsia provides a confidential service for anyone seeking information or support. They offer a helpline and be-friender service, as well as an online support forum. They provide information leaflets, and campaign & lobby for more funding for research. Helpline: 020 8427 4217
Preemies UK is a voluntary group of ladies led and organised by Shelley Mitchell, who donate their time and talents to the purpose of making items of clothing and bedding for tiny babies who are born too soon and burial outfits for little ones who have passed away.
Providing support in pregnancy after loss.
SANDS is a national charity in the UK offering support to those who have lost a child during pregnancy or shortly after birth. They have a network of local support groups, run by bereaved parents. They also distribute information leaflets and resources, and offer training and support to health professionals. Helpline: 020 7436 5881
(Supporting Parents and Relatives In Neonatal Grief) was set up to provide support to parents and relatives who have experienced the death of a baby during pregnancy, at, or just after birth. This includes miscarriage, stillbirth and termination for foetal abnormality. Based in Poole, Dorset.
A Somerset based charity with a charity branch in the West Midlands aiming to create a nationwide framework of support and resources for baby loss parents. The model of care set up in Somerset will be able to be evaluated and replicated in other parts of the country, complementing services already out there and meaning that there will start to be equality for all who experience the loss of a baby.